I was born in Shandong, China, in 1993. My mother found me always falling in darkness because I could not see the barriers. She took me to see doctors in Peking, and at four years of age, I was diagnosed with Retinitis Pigmentosa. During the past twenty years, my vision field was decreasing in medium speed (compared to other RP patients). From 1997 to 2012 I received traditional Chinese medicine and acupuncture – each course lasted about six weeks in the hospital. Unfortunately, there was no significant effect, and my condition continued to worsen. I got electroacupuncture in Shanghai for two years from 2013.
However, my vision field did not expand. More dramatic changes in my sight took place in early 2016 when my vision got suddenly much worse – disturbed center vision and extreme limited peripheral visual field. I could not read and write, and it was difficult to live like a normal person. I searched and looked for other possible therapies to restore my vision. My friends told me that they found the Fedorov Restore Vision Clinic in Berlin (Germany) which offers medical services for patients with retinitis pigmentosa. I was asked to send available medical records and after evaluation received confirmation that I was qualified as candidate to receive the therapy and there was possibility to get an improvement. Having no other choice and considering poor condition of my eyes, I decided to have a try. I learned about electric stimulation therapy on the Internet. According to my gene examination, there is something wrong with my retinal conduction, but this therapy can help my eyes to transfer signal to my brain. Thus principally, this treatment should be useful in my case
I started treatment in July 2016. In the second week of treatment week, I felt that my vision field was definitely better than before. I could avoid knocking into most passers-by and barriers. After ten sessions, I have seen notable changes - as doctors told me, my central vision increased two times and seeing areas around center increased even more - about three times in comparison with baseline examination. I was shocked. However, my vision in darkness did not improve so much. Doctors recommended to do special exercises with the program developed by the Restore Vision Clinic.
After I returned to China, I resisted doing the special training program. Two months later, according to VF results, my vision condition was already stable. I decided to repeat the treatment in Germany again and hoped that my visual field would widen even more. In January 2017, I went back to Berlin to start my second treatment at the Restore Vision Clinic. After a few days I already felt that my visual field became better. My night vision became better in the first week, and I noticed it was much easier. When the treatment finished, the VF of my right eye doubled as before this therapy, as well as my left eye.
Now I can live almost like a normal person. I manage to go everywhere even at nights. Strangers can barely detect my eyesight problems. Before the therapy, I could not read or write any text. Now I am not restricted to reading, writing or working with a computer, only need more rest than others.
I saw top ophthalmologists in China and consulted Institutes of Ophthalmology in Singapore and Japan. They always replied that there was no way to treat RP at that moment, even no way to slow progression of the disease.
According to my experience being a patient of the Fedorov Restore Vision Clinic, I would recommend this treatment to each retinitis pigmentosa patient. I hope that it will help them to improve their vision and enable them to lead a high-quality life.